I was 12 when the pains first started. Excruciating pains such that I would count the hours between pain killers and hide at the back of the class trying not to cry. I watched my mother go through the same thing so I figured it was normal. Periods were to be feared each and every month. They were never on time, never when I expected them and always left me tired. But I carried on.
At 47, for eighteen months I’d been suffering excruciating pain every time I went to the loo. Sometimes, the pain was so horrendous that I would find myself subconsciously stopping myself midflow. Other things began to happen too; my constipation that I had suffered for many years at the time of my period became a permanent problem and I had a constant pain in my left groin that seemed to worsen when I sat for any length of time.
After months of excruciating pain every time I peed, worsening constipation and a continuous stabbing pain in the lower left hand side of my pelvic region, a diagnostic laparoscopy eventually uncovered the root of my problems. I had developed severe adenomyosis as a result of two previous CSs. I needed a hysterectomy.
I have always had painful periods they made me physically unwell. Sometimes I’d have this irritating right sided pain resting on my shoulder blade. I’d been in hospital and seen many consultant with multiple mysterious illnesses.
I remember sitting on the kitchen floor of my Mum and Dad’s house when I was 11 and I said to my mum my tummy hurt – she said perhaps it was my period due to start. Sure enough it started a week later, as did 22 years of constant pain.
So where to start?
Perhaps the fact that this is the first time I’ve managed to sit down and write something and usually I love writing, is an illustration in itself of how the last 10 weeks have been. An ‘uphill with lead boots on’ type of monumental struggle. A physical, emotional and psychological adventure playground of highs and lows.
For all my menstruating years I have had problems. In my teens I just put it down to hormones and hoped it would settle. In my twenties I tried the pill, it controlled the bleeding cycle but did not control the moods and the flow. In my thirties was when I decided I had had enough and wanted some specialist support.
Hi Ladies, I joined the site back in November but this is my first time posting. I’m 39 and a single Mum to my 5 year old son. I have suffered with Endometriosis since my mid-twenties and subsequently had 3 operations to remove the growth, after which I felt much improved until it returned and I began the same repeat of surgery!
I am 41 years of age and and two years ago I was diagnosed with endometriosis after having tubal litigation on the 1st July 2011. I suffered with severe lower back, leg and abdominal pain and heavy periods for three years. I tried treatments of Provera tablets and the Mirena coil to see if the symptoms would disappear. After enduring severe pain for years and see my gyno we decided that a total hysterectomy would be my final option.
I have struggled with Adenomnyosis and Endometriosis (hope those spellings are right) for a very long time. Heavy bleeding, flooding, discomfort, lots of pain and a massive belly for so long. Part of the reason for bearing with the pain all this long was the hope that I would conceive. I have been married 12 years now and he has finally filled for divorce so he can move on with his life and father a child hopefully. I have tried everything from tablets, Mirena coil, I was aware of the hysterectomy option but I had been so scared to make that decision.